Get Involved in Research

The National Osteoporosis Society encourages research projects which aim to improve the prevention, diagnosis and treatment of osteoporosis.

 

On this page you will find links to information on research studies currently being carried out into osteoporosis/bone health and ways that you can get involved.

 

Please note: Inclusion of studies on this page does not imply endorsement or approval of the project or its outcomes by the National Osteoporosis Society.

National Osteoporosis Society Research Grants Committee

Learn more about how the views of people with osteoporosis are represented as the Charity makes decisions on research strategy and funding

Read More

NEED ADVICE ON PARTICIPATING IN RESEARCH?

Call our helpline FREE to speak to one of our nurses.

0808 800 0035

Lines are open from 9am-5pm Monday-Friday and 9am-7pm on Tuesdays, calls are free from UK landlines and mobiles.

About the Helpline

HELP INFORM RESEARCH TO IMPROVE LIFE FOR THOSE WHO BREAK A BONE FROM THE PELVIS DOWN

If you have experienced a broken bone from the pelvis down, care for someone who has, or are a healthcare professional treating patients who have experienced fragility fractures of a lower limb, you can help Oxford University with their project.

The University is working to identify the top ten research priorities to help improve life for people who break a bone in the foot, ankle, leg or pelvis. By filling out a 30-minute online survey, you can help researchers narrow down a list of suggested research areas gathered from their previous survey.

To complete the survey, follow this link: https://oxford.onlinesurveys.ac.uk/fracture

 

PARTICIPANTS REQUESTED FOR DENTAL IMPLANT TRIAL

Queen Mary University of London are undertaking research into bone changes around dental implants in postmenopausal women with osteoporosis.

They are hoping to recruit twenty people to their study, which will take place at Barts Health (Whitechapel, London). Unfortunately they don’t have funding to reimburse travel costs, so realistically you’d probably need to live in London to be able to take part.

Participants would receive a full mouth dental and gum check, treatment for gum disease (if necessary) and a dental implant.

For more information about what is involved, along with the inclusion / exclusion criteria, please read this download: participant information for dental implant trial.

   

 

The Rare UK Bone, Joint and Blood Vessel Study (RUDY)

The study funded by a partnership between the NIHR Rare Diseases Translational Research Collaboration and the Oxford NIHR Musculoskeletal Biomedical Research Unit, University of Oxford, is striving to improve understanding of all aspects of rare bone, joint and blood vessel diseases with the aim of developing new tests and treatments to improve patients' lives.

The first step in doing this is to gather information in order to describe in more detail the different types of rare diseases and what it is like to live with them. The RUDY Study is open to those with rare disorders, including those affected by rare types of osteoporosis (e.g. pregnancy associated osteoporosis or idiopathic juvenile osteoporosis), and participation is designed to be as simple and flexible as possible. The researchers intend to use questionnaires over a period of five years. You can decide what parts of the study you want to be a part of, and how you would like to be contacted: whether by letter, telephone, email or text. You will also be free to change your mind about your participation and your preferences at any time during the study.

If would like to find out more about what participation in the RUDY study would involve please see the participant information sheet or visit the RUDY website www.rudystudy.org.

 

National Institute for Health Research (NIHR) Public Reviewer

The National Institute for Health Research (NIHR) needs people with everyday experience of osteoporosis as a patient or carer to comment on research proposals. As a public reviewer for the NIHR, Evaluation, Trials and Studies (NETS) programmes, you could be invited to look at a research proposal or commissioning brief related to your own area of experience and answer some key questions to inform the board or panel. Each review is a stand-alone task, which is sent to you to do in your own time, to an agreed deadline.

The NIHR funds health research that produces evidence for professionals, policy makers and patients, so they can make informed decisions. And we know that research that reflects the needs and views of the public is more likely to produce results that can be used to improve health and social care.

To express an interest in being a public reviewer for research proposals please email us at netspublic@nihr.ac.uk or call a member of our team on 02380 599302. To find out more, visit: https://www.nihr.ac.uk/patients-and-public/how-to-join-in/review-a-research-application.htm

Health Technology Assessment (HTA) Prioritisation Panels

These are key roles which ensure that the public are actively involved in discussions and decisions on the prioritisation of NIHR health research.  As a patient/public panel member you will help to identify and raise issues from the perspective of patients and the public that are relevant to the research.

The HTA Programme produces independent research about the effectiveness of different healthcare treatments and tests for those who use, manage and provide care in the NHS. It identifies the most important questions that the NHS needs the answers to by consulting widely with these groups, and commissions the research it thinks is most important through different funding routes.

NETSCC periodically runs recruitment campaigns for Public Board and Panel members, and current vacancies can be seen seen at: https://www.nihr.ac.uk/about-us/how-we-are-managed/managing-centres/nihr-evaluation-trials-and-studies-coordinating-centre/patient-and-public-involvement-in-research/current-opportunities.htm.

If you have any queries about other opportunities to get involved, such as Public Reviewing, please contact the NETSCC PPI team at netspublic@nihr.ac.uk or 02380 599302.

NOS runs osteoporosis support groups across the UK, where sufferers and their loved ones can share information and support. Find a group near you.