Get involved in research

Researchers are always looking for people affected by osteoporosis to get involved in their research. This could be by completing a survey or attending a clinical trial.

On this page, you can find information about current research studies into osteoporosis and bone health, and how you may be able to help.

Some studies will need people affected by osteoporosis, sometimes with a particular medical history. Other studies will need help from healthcare professionals. You may not always find a study listed here that is relevant to you.

This page is regularly updated with new opportunities. Follow us on Facebook or Twitter to find out the latest opportunities as they are added, or subscribe to updates.

Please note, inclusion of a study on this page does not mean the National Osteoporosis Society endorses or approves the project or its outcomes.

 

Have you broken a bone in your shoulder, arm or hand?

Date added: January 2018

Research body: Oxford Trauma

You can help if:

  • You have broken a bone in the shoulder, upper arm, elbow, forearm, wrist or hand
  • You care for people that have - as a friend or relative, or a healthcare professional

About the study:

Getting the right treatment for broken bones in the upper limbs is critically important, but there is little research into their treatment and care.

Oxford Trauma want to produce a list of 10 top questions about treatment and care for these kind of broken bones, that could be answered by research.

When can you help?

Until 1st April 2018

How can you help?

You can take the online survey by clicking the button below. If you prefer, you can complete a paper version of the form by contacting the PSP Co-ordinator on oxfordtrauma@ndorms.ox.ac.uk or 01865 223114.

Any questions?

You can contact the PSP Co-ordinator on oxfordtrauma@ndorms.ox.ac.uk or 01865 223114.

Participants needed for dental implant trial

Date added: September 2017

Research body: Queen Mary University of London

You can help if:

You are a postmenopausal woman with osteoporosis, who is missing a tooth and may need a dental implant.

Please read the participant information for dental implant trial for more information.

About the study:

The study is looking into bone changes around dental implants, in people with osteoporosis.

How can you help?

Attend Barts Health, in London, for:

  • a full mouth dental and gum check
  • treatment for any gum disease
  • have a dental implant

Unfortunately travel costs cannot be reimbursed.

Any questions?

For more information about what is involved, or inclusion and exclusion criteria, download the participant information for dental implant trial.

Share your experience of living with a rare type of osteoporosis

Date added: December 2015

Research body: The National Institute for Health Research (NIHR) and University of Oxford

You can help if: 

You have been affected by a rare type of osteoporosis, such as osteoporosis associated with pregnancy or idiopathic juvenile osteoporosis. 

About the study:

This study is looking to improve understanding of rare bone, joint and blood vessel diseases, so new tests and treatments can be developed for them.

When can you help?

Ongoing, over a period of five years.

How can you help?

By completing and updating an online profile and family map, and a number of online questionnaires.

To take part, you need to give permission for the researchers to access your NHS and social care records.

Any questions?

You can find out more about the RUDY study by downloading the participant information or visiting the RUDY website.

Help improve the quality of research into osteoporosis

Research body: The National Institute for Health Research (NIHR)

You can help if:

You have osteoporosis or care for those who do.

About the opportunity:

The NIHR funds health research so professionals, policy makers and patients can make informed decisions based on research.

It needs people with everyday experience of osteoporosis to comment on research proposals related to the condition.

When can you help?

This opportunity is ongoing.

How can you help?

By becoming a reviewer. Reviewers look at a research proposal or commissioning brief and answer key questions for the board or panel.

Each review can be done in your own time, to an agreed deadline.

Any questions?

Find out more on the NIHR website.

Become a public member of a research panel or board

Research body: The National Institute for Health Research (NIHR)

You can help if:

Generally speaking - you have used health or social care services, are interested in research and current affairs, and:

  • Have experience of reading, understanding and reviewing written documents
  • Have experience of attending formal meetings

Previous or current healthcare professionals are not eligible to be a public member of a board.

About the opportunity:

The NIHR regularly seek members of the public to join a research panel or board, which prioritises research by the organisation.

When can you help?

This opportunity is ongoing. The NIHR list latest panel or board vacancies on their website. Click the button below to see the current opportunities. 

How can you help?

Attend a meeting a few times a year, to raise possible issues around research from a patient perspective. Meetings are also attended by clinicians and researchers. 

Expenses are covered and you may be eligible for a small payment for your time. Training and support in the role is also available.

Any questions?

You can email netspublic@nihr.ac.uk or call the PPI team on 023 8059 9302.